Peter Lehmann (Ed.)

Coming off Psychiatric Drugs: Successful Withdrawal from Neuroleptics, Antidepressants, Lithium, Carbamazepine and Tranquilizers

About the authors

Karl Bach Jensen. Born 1951 in Denmark. During 1973 and '74 locked up in a state mental hospital. Forcibly drugged with heavy dosages of neuroleptic drugs and electroshocked. Voluntary psychiatric patient in '75, '80 and '85. Since then, no personal contact with psychiatry. Get help from personal network and from natural remedies when madness appears. Since 1980 taken part in the national user-/survivor-movement in Denmark. Co-founder of the European Network of (ex-)Users and Survivors of Psychiatry in 1991. Chair of the Network 1994—1996. Co-founder and board-member of Landsforeningen af Nuværende og Tidligere Psykiatribrugere (LAP), the Danish Association of Users and Ex-users of Psychiatry. Since 2001, one of two European members of the board of WNUSP. Worked for many years as a teacher in public school. For seven years employed as the manager of a drop-in and activity centre in Kolding, Denmark. These years employed as a consultant in a social development center doing evaluations, research and courses. Edited a couple books critical towards psychiatry and wrote a number of articles in Danish magazines.

Regina Bellion, born 1941, in the Federal Republic of Germany (FRG), cleaning-woman, factory-worker, haute-couture sales-woman, teacher, waitress etc. Today living in early retirement. More

Carola Bock (FRG), pseudonym, born 1949, industrial accountant, in early retirement since 1991.

Wilma Boevink, born 1963, social scientist, an active member of the Dutch user-movement in psychiatry and board member of the European Network of (ex-) Users and Survivors of Psychiatry (ENUSP). Working in Utrecht at the Trimbos-Institute (the Dutch Institute of Mental Health and Addiction). She is the leader of a user-led training and consulting company in the area of recovery, empowerment and experiential expertise of persons with psychiatric disabilities. Since 2006, Chair of Stichting Weerklank, the Dutch organisation of people who hear voices and have psychotic experiences. Publications include Samen werken aan herste. Van ervaringen delen naar kennis overdragen (Working Together on Recovery: From Sharing Experiences to Implementing Knowledge), co-author, 2002; Stories of Recovery: Working Together towards Experiential Knowledge in Mental Health Care, editor, 2006. More

Michael Chmela, born 1958, in Vorarlberg, Austria. 1976 to 1983, studied medicine in Graz. 1997 to 1999, Chair of the information and contact-center for self-help-groups "Club Antenne" in Vorarlberg. 1999, co-founder of the so-called trialogue in Vorarlberg. Active preparation and participation of the First Austrian Conference of people who have experiences with psychiatry, held in Linz 1999, then co-founder and Chair of the Austrian Network of (ex-)users and survivors of psychiatry. 2000, co-founder of the registered organization "omnibus" and lecturer at the Klagenfurt University for social professions, main foci: self-help, movement of (ex-)users and survivors of psychiatry, empowerment, salutogenesis. 2001 to 2007, leader of the peer-conseling-center "Gleiche beraten Gleiche" ("Peers advice Peers") in Bregenz. Publications in different specialist journals about patients' rights and dangers of the anti-stigma-campaign.

Bert Gölden, born 1955, in FRG. Educated as type-setter in 1969, further education as film-setter. From 1985 to 1987 independent work as film-setter. An obsession compulsive disorder led to an early retirement from working life. Since 1996, active working in the self-help and public relations work of the Deutschen Gesellschaft Zwangserkrankungen e.V. (DGZ; German Society for Obsessive Compulsive Disorders). In 1996 he founded a self-help group for people with obsession compulsive disorders and their relatives. Since 2000 regional representative of Nordrhein-Westfalen der DGZ e.V. (North-Rhine-Westfalen Society for Obsessive Compulsive Disorders).

Ilse Gold (FRG), born 1949. She was committed to a closed ward by a specialist for internal diseases for two weeks in 1991; secretly and by her own decision she quit taking Haldol and never took any psychiatric drugs again. Ilse Gold tragically lost her fight against breast cancer, which developed after the psychiatric treatment, on September 7, 1998.

Gábor Gombos, born 1961, is a physicist. He is engaged with the survivor-of-psychiatry-movement, since 1993. Since 1996 he is the chair of a Hungarian self-help association, Voice of Soul. He is the East European board member of the European Network of (ex-)Users and Survivors of Psychiatry, member of the International Panel of the World Network of Users and Survivors of Psychiatry, board member of the Hungarian Branch of the World Association of Psychosocial Rehabilitation.

Katalin Gombos, Hungary, born 1954, computer expert, has more than ten years of experience with psychiatry and neuroleptics. She is one of the founders and board-member of Voice of Soul Association of (ex-)Users and Survivors of Psychiatry.

Maths Jesperson. Born 1954. From 1980 to 1981, inmate of an old mental hospital. From 1982 to 1988, producer at the theatre company, Mercuriusteatern, as well as local politician of the Green Party in Lund, Sweden. Converted 1984 to Catholicism. Since 1988, regional secretary of Riksførbundet för Social och Mental Hælsa (RSMH) (Swedish national organization of [ex-]users and survivors of psychiatry). Founding member of the European Network of (ex-)Users and Survivors of Psychiatry 1991. From 1991 to 2000, editor of the European Newsletter of (ex-)Users and Survivors of Psychiatry. Since 1999, writer of cultural articles in a daily newspaper. Parallel research at the University of Lund (faculty of theatre). Since 2000, actor in the Stumpen-Ensemble, a theatre group with psychiatric survivors, drug addicts and homeless people as actors. Married in 2004. Lives with wife and daughter in Malmö, Sweden. More

Klaus John, born in 1958, in West-Germany, married, father of two children, healing practitioner since 1985 with main focus on: acupuncture, electro-acupuncture according to Voll, homeopathy, guided affective imagery, hypnosis, transpersonal psychology and colortherapy. Three year training in transpersonal psychology with Stanislav Grof, USA. Workshops in this field and holotropic breathwork since 1988. Teacher for autogenic training at adults education centers since 1990. Development of programmes and equipment for color therapy since 1993.

Manuela Kälin (Switzerland), pseudonym. 1969, education as nurse. Practical work in different wards, abroad, too. 1983/84 education as medical masseuse. Three years physiotherapy in a hospital. Further education in complementary medicine. Since 1990 working in her own office in Switzerland.

Kerstin Kempker, born 1958 in Wuppertal (FRG), two daughters, lives in Berlin. From 1996-2001 she worked as leading social worker at the Runaway-house Berlin. Co-founder of the association Für alle Fälle e.V. (In Any Case), which works on the creation of a peer-counseling project. Book publications include: Teure Verständnislosigkeit - Die Sprache der Verrücktheit und die Entgegnung der Psychiatrie (Dear / expensive lack of understanding: The language of madness and the response of psychiatry, 1993); Mitgift. Notizen vom Verschwinden (Dowry: Notes of vanishing, 2000); Flucht in die Wirklichkeit. Das Berliner Weglaufhaus (Escape into reality: The Berlin Runaway-house, ed. 1998). Since 2002, self-employed as project-advisor and fiction author. Publication: Die Betrogenen (The betrayed ones; novel, Klagenfurt 2007). More see www.kerstin-kempker.de

Leo P. Koehne, pseudonym, born in 1970, in FRG, studied politics and works as a freelance journalist. Since 1994 member of the German Association of (ex-) Users and Survivors of Psychiatry.

Jan Kuypers, born in 1942, in Flanders/Belgium. Chemist. Former teacher of mathematics and researcher for process engineering. 1983, non-intended founder of the psychiatry-critical Ombudscenter Kisjot, named after Don Quixote. 1993 project leader for the setting of a Flemish representative union for (ex-)users and survivors of psychiatry. 1991 and 2001 co-founder of the European resp. the World Network of Users and Survivors of Psychiatry. Further academic education in philosophy, criminology, game-theory, ethics, semiotics, churches' history, anthropology, brain-biology, health economics and forensic psychiatry. Hobbies since the middle of the 80ies: Co-founder of the authors' circle Littera and of a school for gifted talents als well as board-member for the science-philosophic working-group De Ronde Tafel (The Round Table) .

Elke Laskowski, born in 1958, in FRG, mother of a daughter, wife. Studied social work and decided to become a nature cure therapist after working with so-called mentally ill people and find another way. She has become a healing practitioner. Since 1991, she works in her own office in Langenhagen near Hannover with hypnosis, Bach flowers, stones, colors and biodynamic body- and aura-work.

Peter Lehmann (FRG). Born in Calw, Black Forest (Germany). Education as a social-pedagogist. Living in Berlin. Author and editor since 1986, then foundation of Peter Lehmann Publishing and Mail-Order Bookstore. 1989 co-founder of the Association for Protection against Psychiatric Violence (running the Runaway-House Berlin). From 1994 to 2000, board-member of the German organization of (ex-) Users and Survivors of Psychiatry. From 1997 to 2000, member of the Executive Committee of Mental Health Europe, the European section of the World Federation for Mental Health. From 1997 to 1999, Chair of the European Network of (ex-) Users and Survivors of Psychiatry (ENUSP), since 2003, board member. 2002, co-founder of Für alle Fälle (In Any Case) and board member in this organisation. Since 2004, member of INTAR (International Network Toward Alternatives and Recovery). Different publications, between others: Alternatives beyond psychiatry (edited together with Peter Stastny, 2007). More

Ulrich Lindner, born in Lübeck, FRG in 1936, living in Unterreichenbach near Pforzheim (Southern Germany). Retired theologian, philologist and historian. Member of the German organization of (ex-)users and survivors of psychiatry, leader of Selbsthilfe für seelische Gesundheit Nordschwarzwald e.V. (Self-Help for Mental Health in the Northern Part of the Black Forest).

Iris Marmotte (pseudonym, FRG), studied German, arts and pedagogic in the German Democratic Republic (GDR), but was removed from the university and put into prison because of political reasons shortly before finishing her studies ("not a socialist personality"). Nurse job in a children's and adolescents' psychiatric ward of a regional hospital. 1983 imprisonment with political reasons, 1984 release from prison and GDR-nationality because of "special efforts of the Federal Republic of Germany (FRG)" and move to FRG. 1986 registration at the University of Bremen and continuation of her studies. 1990 phase of examination and interruption of the studies, because of illness, "revolving-door-patient," from 1992 to 1995 in sheltered living. 1994, "Die blaue Karawane" ("The Blue Caravan"), in Bremen co-founder of the "Nachtschwärmer"-("Nocturnal-Reveler"-)projects and work as board-member, founding-member of the music-band "Die Therapie-Resistenten" ("The Therapy-Resistant"). 1995 job as neighbourly helper and reestablishment of the studies. 1997 job as night watch in a hospital and pedagogical worker in a home for mentally ill persons. 2000, finished her studies, since then, grammar school teacher.

Constanze Meyer, born in 1959, in FRG, psychologist and psychotherapist. Since the beginning, her studies dealt intensively with women-specific health-issues. From 1992 to 1999, work at “Schwindel-Frei” (“Head-for-Heights”), an information and counseling center for drug-dependent women in Berlin. Established as independent psychotherapist in Berlin-Spandau. Working in the field of supervision and education.

Harald Müller (FRG), pseudonym.

Eiko Nagano (pseudonym), born 1953, in Japan. From 1968 until 1999, she was a psychiatric user. She graduated from Waseda University, Tokyo, in 1979 in sociology. Since 1981, she has been a member of the Zenkoku "Seishinbyou" sha Shudan, the Japanese National Group of Mental Disabled People. Publications: "Seishin Iryou" ("Psychiatric Treatments," Tokyo: Gendaishokan 1990); "Seishin Iryou User no Mezasumono—Oubei no self-help katsudo" ("About the Interests of Users of Psychiatry—Self-Help Activities in Europe and the USA," Osaka: Buraku kaihour syupansha 1999).

Mary Nettle (England). (England) became a user of mental health services in 1978 and turned this negative into a positive in 1992 when she became a mental health user consultant. She is involved in presenting the user perspective in all aspects of mental health with a particular interest in user led research. Honorary Fellow of Brunel University. Working for the Mental Health Act Commission an organisation established by the government in England and Wales to ensure the rights of patients detained under the 1983 Mental Health Act are upheld. Working with INVOLVE (a group of service users, carers, workers from voluntary organisations, health and social service managers and researchers) which advises the British Goverment on how to ensure the service user voice is heard by those undertaking health, social care and public health research. Chair of the European Network of (ex-) Users and Survivors of Psychiatry. Member of the Disabled Women's Committee of the European Disability Forum.

Una M. Parker, Yorkshire, England, born 1935. Retired school teacher. Quaker. Lives with black cat in a flat in Leeds since 2001, leaving behind the large village where she had lived for 33 years. Still friends with husband who lives in Australia, since 1993. Two adult daughters. Appointed in 1996 as governor (voluntary) of the mental hospital in which she was a patient 30 years ago. Co-counselor (Re-evaluation Counseling) since 1974. Now speaks to groups and runs workshops on mental health. Belongs to local, national and international groups of psychiatry survivors, particularly Mindlink and ECT Anonymous. Attended the Forum that met in Bejing alongside the UN Fourth World conference on Women in 1995. Enjoys singing, circle dancing, T'ai-Chi, co-counseling, visiting family and friends, reading, writing, using computer, knitting, sewing, gardening, stroking her cat …

Nada Rath, née Dmitrasinovic 1940 in Yugoslavia, industrial chemist, now living in Germany, early retirement 1995, co-founded the German organization of (ex-)users and survivors of psychiatry in 1992, board-member of this organization from 1996 to 1998. 1997 initiator of the foundation of the Hessian regional organization of (ex-)users and survivors of psychiatry.

Erwin Redig (Belgium). Spent several years in psychiatry. Living as a free man now in Antwerp, Belgium, and have connections with the national and international survivor movements. The work is essentially humanistic; it is about human rights and human dignity. Erwin Redig died on June 14, 1999.

Hannelore Reetz (FRG), pseudonym, born 1943, accountant, today part-time working as a dentist assistant, married, clean since 1990.

Roland A. Richter, born in 1963, in FRG, worked as a social worker in state institutions until 1995, since then he is working as a case worker for people in custodial care and sheltered living, for people who are regarded to be chronical mentally ill. Since 1995, has lived in Bad Münstereifel/Nordrhein-Westfalen, works self-employed as judicially appointed guide and advices stationary institutions as advisor for organizations in the management of quality.

Marc Rufer (Switzerland), M.D. Long-standing critic of psychiatric diagnostic systems, psychopharmacology and the use of force in psychiatry. Good contacts and exchange with independent (ex-)users and survivors of psychiatry. Book publications: Irrsinn Psychiatrie (Insane Psychiatry), 1988; 3., revised edition 1997; Wer ist irr? (Who's Crazy?), 1991; Glückspillen. Ecstasy, Prozac und das Comeback der Psychopharmaka (Happy Pills: Ecstasy, Prozac and the Comeback of Psychotropic Drugs), 1995. More

Jasna Russo, born in Belgrade in 1964. Graduated in clinical psychology. Lives in Germany. Active in the survivor-led organisation In Any Case, working in the field of research and training. Board member of European Network of (ex-) Users and Survivors of Psychiatry. Articles and contributions in anthologies in Germany and UK. Research reports include Taking a Stand: Homelessness and Psychiatry from Survivors' Perspective (together with T. Fink, Berlin 2003); From One's Own Perspective: Users' Experiences of Person Centred Care (together with F. Scheibe and A. K. Lorenz, Berlin 2007).

Lynne Setter, country of origin New Zealand, born 1963, no children, divorced. Occupation—International Marketing Consultant. First suicide attempt aged 9, hospitalized a number of times from early teenage to recent years. Lived in Asia, Europe, the Middle East and the United States. After ten years abroad, now living in New Zealand.

Martin Urban (FRG), born 1939, psychologist and psychotherapist, worked for seven years in a psychiatric and for six years in a hospital for psychosomatic medicine, since 1989 working in his own office near Stuttgart. He founded a halfway-house and, after 12 years of leading, he changed it into a user-controlled institution. As a member of the association of German psychologists, he is the head of the section Clinical psychologists in psychiatry. As well, in the German Society for Social Psychiatry, he is the speaker of the committee Psychotherapy. He edited two books: Psychotherapie der Psychosen—Konzentrische Annäherungen an den Weg der Heilung (Psychotherapy of Psychoses: Concentric Approaches to the Way of Healing), Lengerich 2000, and Bindungstheorie in der Psychiatrie (The Importance of Attachment Theory in Psychiatry), Göttingen 2005.

Wolfgang Voelzke (FRG), academically qualified economist, employed since 1975 by the town administration in Bielefeld. Beginning 2000, he works as co-ordinator for psychiatry and addiction. He co-founded the national organization of (ex-)users and survivors of psychiatry in Germany and the local organization of (ex-)users and survivors of psychiatry in Bielefeld.

David Webb, born in 1955, has completed a PhD on suicide as a crisis of the self at Victoria University in 2005 in Melbourne, Australia. This research, motivated by David's personal history of suicide attempts, shows that first-person knowledge of suicidality is necessary to understand suicide, but that the first-person voice is systematically excluded from current suicide research. During his research, he has embraced Mad Culture as a liberating community of people fighting for greater depth, sensitivity, compassion and justice for those struggling for mental, emotional, social and spiritual wellbeing. Prior to his years of madness, David worked in the computer software industry as a programmer, designer and analyst, and as a university lecturer. He has lived in New York, Delhi and London and now lives among the gum trees and parrots on the edge of Melbourne. More

Gerda Wozart (pseudonym), born in 1946, in Bavaria. Longer stays in England and France. Studied in Perpignan, married twice, loads of kids (her own others'). For some time she has been living in the Black Forest. Lecturer in an adult education center, founded her own office for writing and translation, publishes poems and short stories. Since 2001, first chairwoman of the Independent German Authors' Organization (FDA) in Baden-Württemberg.

Josef Zehentbauer, born in 1945, in FRG, married, four children. Doctor, psychotherapist and author. Several years' work in neurology (University of Würzburg), different psychiatric clinics and the emergency ward of a mental hospital. Worked as a doctor in Nigeria and India. Initiated projects with Franco Basaglia and other exponents of Italian "Critical Psychiatry." Publications including among others: "Die Auflösung der Irrenhäuser oder: Die Neue Psychiatrie in Italien" ("The Resolution of the Madhouses or: the New Psychiatry in Italy," 1983; Munich, 4. edition 1997); "Chemie für die Seele. Psyche, Psychopharmaka und alternative Heilmethoden" ("Chemistry for the Soul: Psyche, Psychotropic Drugs and Alternatives Methods of Cure," Königstein 1986; 9. edition 2005 by Peter Lehmann Publishing Berlin; "Chimica per l'anima. Psicofarmaci e terapie alternative," Diegaro di Cesena: Macro Edizioni 2002); "Die Seele zerstören. Neuroleptika, der größte Arzneimittelskandal des Jahrhunderts" ("To Destroy the Soul. Neuroleptics: the Biggest Drug Scandal of the Century," video documentary, Munich 1989); "Körpereigene Drogen. Die ungenutzten Fähigkeiten unseres Gehirns" ("The Body's Own Drugs: the Unused Capabilities of Our Brain," Munich 1993, 11. edition 2001); "Psycho-Pillen. Wirkungen, Gefahren und Alternativen" ("Psycho-Pills: Effects, Risks and Alternatives," Munich, 4. edition 1998); "Abenteuer Seele. Psychische Krisen als Chance nutzen" ("Adventure Soul: to Use Psychic Crises as a Chance," Düsseldorf 2000); "Melancholie—Die traurige Leichtigkeit des Seins" ("Melancholy: the Sad Lightness of Being," Stuttgart 2000; 2. edition 2002); "Das Liebe-Prinzip. Reich werden durch Verschwenden" ("The Love-Principle—Becoming Rich by Extravagance," Munich 2005, together with Alfred Rott).

Katherine Zurcher. Born in Michigan, USA, has been living in Switzerland for over 40 years. After working for many years as a secretary in international organizations, she was diagnosed with fibromyalgia (a chronic illness which affects muscles, tendons and ligaments and causes pain, headache, fatigue and many other symptoms) in 1999. She regrets having tried so hard to adapt to society, as this was most probably what led to her illness.
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